Your son’s story mirrors my own life. I apparently had a head injury in 1972, aged 8 or 9 about which I was not told until approx 1993. I think this probably explains why I don’t have memories before age 9 (which makes life difficult enough) though my memory is now efficient. A few years after the injury, feeling unwell I was diagnosed with migraine. I have had another 30 years of paralysis, paresis and other symptoms which read exactly like those of Hypopituitarism but remain definitively undiagnosed. I have recently, following my own research responded to Pyridostigmine (Mestinon) and now Prednisolone (which I am told I cannot stay on). Whether the latter was acting as a steroid hormone replacement or as an immunosuppressant I don’t know for sure.

I would like to thank Tara Kearney for her pioneering work in this field, it gives hope and solace to people like me and will hopefully prevent others suffering needlessly, in pain and also enduring stigma, abuse and humiliation etc largely stemming from the ignorance of others.